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  Development of a core set questionnaire by the European Society of Cutaneous Lupus Erythematosus (EUSCLE)

Kuhn, A., Kuehn, E., Meuth, A., Haust, M., Nyberg, F., Werth, V., et al. (2009). Development of a core set questionnaire by the European Society of Cutaneous Lupus Erythematosus (EUSCLE). Autoimmunity Reviews, 8(8), 702-712. doi:10.1016/j.autrev.2009.02.022.

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Item Permalink: http://hdl.handle.net/11858/00-001M-0000-0012-32E9-0 Version Permalink: http://hdl.handle.net/21.11116/0000-0002-F993-F
Genre: Journal Article

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 Creators:
Kuhn, Annegret1, Author
Kuehn, Esther1, Author              
Meuth, Anne1, Author
Haust, Merle2, Author
Nyberg, Filipa3, Author
Werth, V.4, Author
Ruzicka, T.5, Author
Schmitt, Valeria1, Author
Bonsmann, Giesela1, Author
Affiliations:
1Department of Dermatology, University of Münster, Germany, ou_persistent22              
2Department of Dermatology, University of Duesseldorf, Germany, ou_persistent22              
3Department of Dermatology, Karolinska Institute, Danderyds Hospital, Stockholm, Sweden, ou_persistent22              
4Department of Dermatology, University of Pennsylvania, Philadelphia, USA, ou_persistent22              
5Department of Dermatology, Ludwig-Maximilian-University of Munich, Germany, ou_persistent22              

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Free keywords: Autoimmune disease; Cutaneous lupus erythematosus; Epidemiology; Europe; Questionnaire
 Abstract: A study group of the European Society of Cutaneous Lupus Erythematosus (EUSCLE) developed a Core Set Questionnaire for the evaluation of patients with cutaneous lupus erythematosus (CLE). The aim of the EUSCLE Core Set Questionnaire is to gain a broad and comparable data collection of patients with CLE from different European centers, to achieve consensus concerning evidence-based clinical standards for disease assessment, and to develop diagnostic and therapeutic guidelines. The authors designed the EUSCLE Core Set Questionnaire by including parameters considered most relevant for the evaluation of CLE and compiled from international literature, clinical praxis, and long-term experience with this disease. The compilation of the different parameters for the evaluation of CLE resulted in the 4-sided EUSCLE Core Set Questionnaire with six sections on patient data, diagnosis, skin involvement, activity and damage of disease, laboratory analysis, and treatment. Thus, the EUSCLE Core Set Questionnaire for CLE constitutes a useful tool for the collection and evaluation of epidemiological data from patients with this disease. It enables consistent statistical evaluation, exchange, and comparison of patient's data within several European countries and provides a set of guidelines for standardized diagnostic and therapeutic strategies in CLE.

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Language(s): eng - English
 Dates: 2009-02-012009-02-102009-02-162009-07
 Publication Status: Published in print
 Pages: -
 Publishing info: -
 Table of Contents: -
 Rev. Method: Peer
 Identifiers: DOI: 10.1016/j.autrev.2009.02.022
PMID: 19232553
Other: Epub 2009
 Degree: -

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Title: Autoimmunity Reviews
Source Genre: Journal
 Creator(s):
Affiliations:
Publ. Info: -
Pages: - Volume / Issue: 8 (8) Sequence Number: - Start / End Page: 702 - 712 Identifier: -