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  High acceptance of an early dyslexia screening test involving genetic analyses in Germany

Wilcke, A., Müller, B., Schaadt, G., the LEGASCREEN Consortium, Kirsten, H., & Boltze, J. (2015). High acceptance of an early dyslexia screening test involving genetic analyses in Germany. European Journal of Human Genetics, 24, 178-182. doi:10.1038/ejhg.2015.103.

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Item Permalink: http://hdl.handle.net/11858/00-001M-0000-0027-822A-4 Version Permalink: http://hdl.handle.net/21.11116/0000-0003-1EEA-5
Genre: Journal Article

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 Creators:
Wilcke, Arndt1, 2, Author
Müller, Bent1, Author
Schaadt, Gesa3, 4, 5, Author              
the LEGASCREEN Consortium, Author              
Friederici, Angela D.3, 5, Contributor              
Emmrich, Frank5, 6, Contributor
Brauer, Jens3, 5, Contributor              
Wilcke, Arndt5, Contributor
Neef, Nicole3, Contributor              
Skeide, Michael A.3, Contributor              
Müller, Bent5, Contributor
Kraft, Indra5, Contributor
Czepezauer, Ivone5, Contributor
Bobovnikov, Nadin5, Contributor
Kirsten, Holger1, 2, 5, 7, 8, Author
Boltze, Johannes1, 2, 5, 9, Author
Affiliations:
1Department of Cell Therapy, Fraunhofer Institute for Cell Therapy and Immunology, Leipzig, Germany, ou_persistent22              
2Translational Centre for Regenerative Medicine (TRM), University of Leipzig, Germany, ou_persistent22              
3Department Neuropsychology, MPI for Human Cognitive and Brain Sciences, Max Planck Society, ou_634551              
4Department of Psychology, Humboldt University Berlin, Germany, ou_persistent22              
5The LEGASCREEN Consortium, Leipzig, Germany, ou_persistent22              
6Fraunhofer Institute for Cell Therapy and Immunology, Leipzig, Germany, ou_persistent22              
7Institute for Medical Informatics, Statistics and Epidemiology (IMISE), University of Leipzig, Germany, ou_persistent22              
8Leipzig Research Center for Civilization Diseases (LIFE), University of Leipzig, Germany, ou_persistent22              
9Stroke and Neurovascular Regulation Laboratory, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA, ou_persistent22              

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 Abstract: Dyslexia is a developmental disorder characterized by severe problems in the acquisition of reading and writing skills. It has a strong neurobiological basis. Genetic influence is estimated at 50–70%. One of the central problems with dyslexia is its late diagnosis, normally not before the end of the 2nd grade, resulting in the loss of several years for early therapy. Currently, research is focusing on the development of early tests for dyslexia, which may be based on EEG and genetics. Our aim was to determine the acceptance of such a future test among parents. We conducted a representative survey in Germany with 1000 parents of children aged 3–7 years, with and without experience of dyslexia. 88.7% of the parents supported the introduction of an early test for dyslexia based on EEG and genetics; 82.8% would have their own children tested, and 57.9% were willing to pay for the test if health insurance did not cover the costs. Test acceptance was significantly higher if parents had prior experience with dyslexia. The perceived benefits of such a test were early recognition and remediation and, preventing deficits. Concerns regarded the precision of the test, its potentially stigmatizing effect and its costs. The high overall support for the test leads to the conclusion that parents would accept a test for dyslexia based on EEG and genetics.

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Language(s): eng - English
 Dates: 2015-04-092014-09-242015-04-172015-06-03
 Publication Status: Published online
 Pages: -
 Publishing info: -
 Table of Contents: -
 Rev. Method: Peer
 Identifiers: DOI: 10.1038/ejhg.2015.103
PMID: 26036858
PMC: PMC4717194
Other: Epub 2015
 Degree: -

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Title: European Journal of Human Genetics
  Other : Eur. J. Hum. Genet.
Source Genre: Journal
 Creator(s):
Affiliations:
Publ. Info: Nature Publishing Group
Pages: - Volume / Issue: 24 Sequence Number: - Start / End Page: 178 - 182 Identifier: ISSN: 1018-4813
CoNE: /journals/resource/954925585277_1