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  The association between stuttering burden and psychosocial aspects of life in adults

Engelen, M. M., Franken, M.-C.-J.-P., Stipdonk, L. W., Horton, S. E., Jackson, V. E., Reilly, S., et al. (2024). The association between stuttering burden and psychosocial aspects of life in adults. Journal of Speech, Language, and Hearing Research, 67(5), 1385-1399. doi:10.1044/2024_JSLHR-23-00562.

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 Creators:
Engelen, Marscha M.1, Author           
Franken, Marie-Christine J. P.2, Author
Stipdonk, Lottie W.2, Author
Horton, Sarah E.3, 4, Author
Jackson, Victoria E.4, 5, Author
Reilly, Sheena3, 6, Author
Morgan, Angela T.3, 4, 7, Author
Fisher, Simon E.1, 8, Author           
Van Dulmen, Sandra9, 10, 11, Author
Eising, Else1, Author           
Affiliations:
1Language and Genetics Department, MPI for Psycholinguistics, Max Planck Society, ou_792549              
2Erasmus University Medical Center, Rotterdam, The Netherlands, ou_persistent22              
3Murdoch Children’s Research Institute, Melbourne, Australia, ou_persistent22              
4University of Melbourne, Parkville, Australia, ou_persistent22              
5The Walter and Eliza Hall Institute of Medical Research, Parkville, Australia, ou_persistent22              
6Griffith University, Southport, Australia, ou_persistent22              
7Royal Children’s Hospital, Melbourne, Australia, ou_persistent22              
8Donders Institute for Brain, Cognition and Behaviour, External Organizations, ou_55236              
9NIVEL (Netherlands Institute for Health Services Research), Utrecht, The Netherlands, ou_persistent22              
10Radboud University Medical Center, Nijmegen, The Netherlands, ou_persistent22              
11University of Borås, Borås, Sweden, ou_persistent22              

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 Abstract: Purpose:
Stuttering is a speech condition that can have a major impact on a person's quality of life. This descriptive study aimed to identify subgroups of people who stutter (PWS) based on stuttering burden and to investigate differences between these subgroups on psychosocial aspects of life.

Method:
The study included 618 adult participants who stutter. They completed a detailed survey examining stuttering symptomatology, impact of stuttering on anxiety, education and employment, experience of stuttering, and levels of depression, anxiety, and stress. A two-step cluster analytic procedure was performed to identify subgroups of PWS, based on self-report of stuttering frequency, severity, affect, and anxiety, four measures that together inform about stuttering burden.

Results:
We identified a high- (n = 230) and a low-burden subgroup (n = 372). The high-burden subgroup reported a significantly higher impact of stuttering on education and employment, and higher levels of general depression, anxiety, stress, and overall impact of stuttering. These participants also reported that they trialed more different stuttering therapies than those with lower burden.

Conclusions:
Our results emphasize the need to be attentive to the diverse experiences and needs of PWS, rather than treating them as a homogeneous group. Our findings also stress the importance of personalized therapeutic strategies for individuals with stuttering, considering all aspects that could influence their stuttering burden. People with high-burden stuttering might, for example, have a higher need for psychological therapy to reduce stuttering-related anxiety. People with less emotional reactions but severe speech distortions may also have a moderate to high burden, but they may have a higher need for speech techniques to communicate with more ease. Future research should give more insights into the therapeutic needs of people highly burdened by their stuttering.

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Language(s): eng - English
 Dates: 20242024-04-162024
 Publication Status: Issued
 Pages: -
 Publishing info: -
 Table of Contents: -
 Rev. Type: Peer
 Identifiers: DOI: 10.1044/2024_JSLHR-23-00562
 Degree: -

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Title: Journal of Speech, Language, and Hearing Research
Source Genre: Journal
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Publ. Info: Rockville, MD : American Speech-Language-Hearing Association
Pages: - Volume / Issue: 67 (5) Sequence Number: - Start / End Page: 1385 - 1399 Identifier: ISSN: 1092-4388
CoNE: https://pure.mpg.de/cone/journals/resource/954927548270